Living with/out Dementia in Contemporary South Korea
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Living with/out Dementia in Contemporary South Korea. / Lee, Jieun.
I: Medical Anthropology Quarterly, Bind 33, Nr. 4, 2019, s. 501-516.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Living with/out Dementia in Contemporary South Korea
AU - Lee, Jieun
PY - 2019
Y1 - 2019
N2 - While the debate on diagnostic disclosure is often based on the premise that knowing about one's condition (the diagnosis and its prognosis) is essential in securing the patient's autonomy, many people with dementia in Korea are not told directly about their diagnosis. This article concerns the laborious and ethically contentious post-diagnostic living undertaken by the families of people with dementia, which I call “living with/out dementia.” This is a paradoxical form of living that has emerged through the increasing biomedicalization of dementia, the socialization of elder care, and an enduring fear of dependency in old age. Attending to how living with/out dementia comes to be initiated and maintained through efforts of care, I argue that nondisclosure entails a kind of ethical process through which dementia is un/done in the caregivers’ struggle to truthfully engage with the person with dementia while actively hiding the diagnostic truth from him or her.
AB - While the debate on diagnostic disclosure is often based on the premise that knowing about one's condition (the diagnosis and its prognosis) is essential in securing the patient's autonomy, many people with dementia in Korea are not told directly about their diagnosis. This article concerns the laborious and ethically contentious post-diagnostic living undertaken by the families of people with dementia, which I call “living with/out dementia.” This is a paradoxical form of living that has emerged through the increasing biomedicalization of dementia, the socialization of elder care, and an enduring fear of dependency in old age. Attending to how living with/out dementia comes to be initiated and maintained through efforts of care, I argue that nondisclosure entails a kind of ethical process through which dementia is un/done in the caregivers’ struggle to truthfully engage with the person with dementia while actively hiding the diagnostic truth from him or her.
KW - bioethics
KW - care
KW - dementia
KW - diagnostic disclosure
KW - Korea
U2 - 10.1111/maq.12532
DO - 10.1111/maq.12532
M3 - Journal article
C2 - 31206771
AN - SCOPUS:85069944990
VL - 33
SP - 501
EP - 516
JO - Medical Anthropology Quarterly
JF - Medical Anthropology Quarterly
SN - 0745-5194
IS - 4
ER -
ID: 226531096